Jonah's Just Begun-Foundation to Cure Sanfilippo Inc.

General Organizational Information

Organization Name:

Organization Acronym:

Jonah's Just Begun

Year Established:

2010

Brochure:

jonah_brochure_12oct2010.pdf

Type of organization:

Condition(s)-specific organization

Mission Statement:

Jonah's Just Begun - Foundation to Cure Sanfilippo Inc.was established in our son's honor. Our goal is to promote awareness of Sanfilippo, by educating those on the "front lines" of the characteristics and symptoms of this disease. We aim to help diagnose these children.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Mucopolysaccharidosis type IIIC

Organizational Contact Information

Prefix:

Mrs.

Title:

President

First Name:

Jill

Last Name:

Wood

Address:

PO Box 150057

Brooklyn, NY, 11215

United States

See map: Google Maps

Phone:

+1 347 831 0246

Fax:

+1 347 710 3136

Email:

jw.mps3c@yahoo.com

Website Address:

http://jonahsjustbegun.org/

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Parents

Fathers

Mothers

Siblings

Grandparents

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Awareness Programs