Genomics and Personalized Medicine Act
Consumer Task Force on Genetic Testing
In October 2006, Genetic Alliance established the Consumer Task Force on Genetic Testing. The Task Force will, with input from all relevant stakeholders, examine the genetic testing landscape. The Task Force’s members are all advocates who have experience in this issue. They are working toward a set of policy recommendations to be presented to the community and specific agencies.
Members:
Pat Furlong
Parent Project Muscular Dystrophy
Micki Gartzke
Hunter’s Hope Foundation
Camron King
VHL Family Alliance
Dan Lara
PKD Foundation
Kelly Leight
CARES Foundation
Jill Levy-Fisch
Save Babies Through Screening Foundation
Mary Lou Smith
Research Advocacy Network
Kay Wissmann
Y-Me National Breast Cancer Organization
