[H.R.2889, S.1712]

What is the Screening for Health of Infants and Newborns Act?

The Screening for Health of Infants and Newborns Act is a bill that creates guidelines that states may follow in reporting newborn screening data. In addition, it develops a surveillance system for newborn screening programs and for tracking these newborn disorders. Additionally, the Act establishes a central clearinghouse to provide current educational and family support information, resources, and data on newborn screening for parents and family members of newborns. Finally, the bill creates demonstration grants to increase the capacity of states to screen for the uniform set of conditions or study the potential benefits of screening for additional newborn conditions beyond the core conditions.