Genetics Day on the Hill 2008 Materials
Answers to Frequently Asked Questions
• Genetics Day on the Hill participants are strongly encouraged to participate in a series of
three training sessions preceding the event.
• Questions to Reflect Upon Prior to Visits
• Background Information on the Issues
o GINA
• What GINA Does and Doesn’t Do — Genetics and Public Policy Center
• Francis S. Collins, M.K. Holohan, and Kathy Hudson
“Keeping Pace with the Times —
The Genetic Information Nondiscrimination Act of 2008”
New England Journal of Medicine. 358.25 (2008): 2661-2663.
o Genetic Testing
• Javitt, Gail H.
“In Search of a Coherent Framework:
Options for FDA Oversight of Genetic Tests”
Food and Drug Law Journal. 62.4 (2007): 616-652.
• Genetic Alliance Genetic Testing Summit Report
o Health IT
• Information on health information technology from HHS
