GENETIC TESTING SUMMIT AGENDA

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Eyes on the Prize: Truth Telling about Genetic Testing

Renaissance M Street, Washington, DC

Draft Agenda

Thursday, September 20, 2007

8 AM           Registration/Continental breakfast

9 AM          
DHHS & Personalized Health Care

                  
Greg Downing, Program Director, Personalized Health Care,

                   U.S. Department of Health and Human Services (HHS)

9:15 AM      
Truth Telling about Genetic Testing

                  
Sharon Terry, President and CEO, Genetic Alliance

9:30 AM      
Survey of the Characteristics of a Range of Tests

                  
Howard McLeod, Director, University of North Carolina (UNC)

                   Institute for Pharmacogenomics and Individualized Therapy

10:00 AM     Q & A

10:30 AM     Break

11:00 AM    
Research and Development Opportunities and Challenges

                  
Francis Collins, Director, National Human Genome Research Institute

                  
Brad Popovich, President and CEO, Sirius Genomics

                  
Randy Scott, Chairman and CEO, Genomic Health

11:45 AM     Q & A

12:15 PM     Summary of the morning

                  
Sharon Terry, President and CEO, Genetic Alliance

12:30 PM     Lunch

1:30 PM      
Translation and Test Development

                   Moderated by

Christopher Austin, Director, NIH Chemical Genomics

                   Center

                   - ANALYTICAL VALIDITY, CLINICAL VALIDITY, CLINICAL UTILITY

                      

Linda Bradley, Evaluation of Genomic Applications in Practice and

                       Prevention, Geneticist, National Office of Public Health Genomics, CDC

                   - CLINICAL SIGNIFICANCE: SO YOU CAN DO IT, DOES IT MATTER?

                      

Elda Railey, Co-founder, Research Advocacy Network

                   - CHALLENGES IN APPLYING GENOMIC TECHNOLOGY TO

                     MOLECULAR DIAGNOSTICS

                      

Janet A. Warrington, Vice President, Standards and Government

                       Policy, Affymetrix

2:15 PM      Q & A

3:00 PM      Break

3:30 PM     
Clinical Delivery/Commercialization Roundtable

                  Moderated by

Robert Egge, Executive Director of the Alzheimer

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