Relationships Between Biobanks and Their Specimen Contributors: How Organizational Approach Might Matter

Relationships Between Biobanks and Their Specimen Contributors: How Organizational Approach Might Matter

Genetic Alliance 25th Anniversary Annual Conference Header

Workshops: Session I
Saturday, June 25 2011
9:00 a.m. – 10:30 a.m.

Biobank creators must choose how to frame the relationship between the biobank and its specimen contributors, a decision with enormous impact on the biobank’s work and products. This presentation will describe and compare four models demonstrating a range of perspectives on the proper relationship between biobanks and their specimen contributors: trade secret, population-based, and member-model approaches as well as the Personal Genome Project.

Presenters:
Jean Cadigan – Research Associate in Social Medicine, University of North Carolina School of Medicine
John Conley – William Rand Kenan, Jr. Professor of Law, University of North Carolina at Chapel Hill
Wendell Fortson – Post-doctoral Fellow, Center for Genomics and Society, University of North Carolina at Chapel Hill
Dan Vorhaus – Attorney, Robinson, Bradshaw & Hinson

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