Workshops: Session III
Saturday, June 25 2011
1:30 p.m. – 3:00 p.m.

Presenters will discuss tools developed by three HRSA Regional Collaboratives to aid families and providers in emergency preparedness or transition activities. The Region 4 Genetics Collaborative will present information on MyEIF.org, a web-based tool used to summarize and communicate critical personalized information during a medical emergency; the New York-Mid-Atlantic Consortium will discuss Emergency Cards for conditions identified through newborn screening and evaluation of the Minerva Health Record, which can be carried on a flash drive; and the Western States Genetic Services Collaborative will present a portable health recorddesigned for individuals with genetic and metabolic conditions.

Presenters:
Kristi Bentler – Newborn Metabolic Screening Coordinator, University of Minnesota Amplatz Children's Hospital
Jacquie Stock – Research Associate, Seattle Children’s Hospital
Kathryn Tullis – New York-Mid-Atlantic Consortium Project Coordinator, A.I. duPont Hospital for Children