Workshops: Session III
Saturday, June 25 2011
1:30 p.m. – 3:00 p.m.

This workshop will address three questions: (1) What ethical issues arise during genotype-driven research recruitment? (2) In what situations do participants feel researchers should offer individual genetic research results? (2) What do participants see as the benefits and concerns of receiving individual research results? A fundamental tension exists between avoiding the disclosure of potentially unwanted and uncertain information and avoiding deception when explaining to prospective participants the purpose of the research and why they are eligible.

Presenters:
Marsha Michie – Postdoctoral Research Fellow, Center for Genomics and Society, University of North Carolina-Chapel Hill
Emily Namey – Clinical Research Coordinator, Institute for Genome Sciences & Policy, Duke University
Tracey Brazg – Research Associate, Seattle Children's Research Institute