Family Medical Data Sharing and Ethical Norms

Family Medical Data Sharing and Ethical Norms

Genetic Alliance 25th Anniversary Annual Conference Header

Workshop Session IV
Friday, June 24, 2011
3:30 p.m. – 5:00 p.m.

Patients will increasingly have access to their medical information in electronic form. The ability to share this data among family members could make construction of essential family medical history data easier and more accurate. Presenters will report on public attitudes regarding such data sharing and lead discussion about how the new possibilities of electronic medical records and genomic information may challenge our current ethical norms.

Presenters:
Vernal Branch - Consumer Advocate
Margaret Foster Riley - Professor, University of Virginia School of Law
Ruth Gaare-Bernheim - Chairman, Department of Public Health Sciences, University of Virginia School of Medicine
William Knaus – Professor, Department of Public Health Sciences, University of Virginia School of Medicine

Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org