Workshops: Session III
Saturday, June 25 2011
1:30 p.m. – 3:00 p.m.

The public health system encompasses governments, healthcare providers, and others working to improve population health, but people with rare disorders may feel left out. Presenters will discuss how the federal Centers for Disease Control and Prevention and Health Services and Resources Administration and state health departments work together to assess and improve the health of people with rare disorders, using sickle cell disease and hemophilia as examples.

Presenters:
Hani Atrash – Director, Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities (NCBDDD), CDC
Scott Grosse – Associate Director, Health Services Research and Evaluation, Division of Blood Disorders, NCBDDD, CDC
Maxine Hayes – State Health Officer, Washington State Department of Health
Michele Puryear – Chief, Genetic Services Branch, Maternal and Child Health Bureau, HRSA