Genetic Alliance 25th Anniversary Annual Conference: Agenda
Thursday, June 23, 2011
Friday, June 24, 2011
7:00 a.m. – 6:00 p.m.
Registration
7:30 a.m. – 8:00 a.m.
Welcome Breakfast
8:00 a.m. – 8:30 a.m.
Opening Session: A Charge for Innovation
8:30 a.m. – 6:00 p.m.
DAYLONG SESSIONS
12:00 p.m. – 1:30 p.m.
Lunch
6:00 p.m. – 7:00 p.m.
Cocktail Reception and Exhibits Open
7:00 p.m. – 10:00 p.m.
Dinner Debate: The Genomic Era: Hype or Hope?
10:00 p.m. – 12:00 a.m.
After Hours Social
Saturday, June 25 2011
7:00 a.m. – 6:00 p.m.
Registration
7:15 a.m. – 8:00 a.m.
Morning Walk
8:00 a.m. – 9:00 a.m.
Networking Breakfast
9:00 a.m. – 10:30 a.m.
Workshops: Session I
Relationships Between Biobanks and Their Specimen Contributors: How Organizational Approach Might Matter
Keywords: biobank
Beyond “Celebrity Genomics”: The Current Status of Whole Genome Sequencing for Clinical Care
Keywords: research, clinical care, genomics, sequencing
Lawsuits and Dried Bloodspots Retention
Keywords: newborn screening, research, ELSI
Accelerating Adoption of Medical Genetics Innovations
Keywords: clinical care, innovation, genetic testing, regulation
10:30 a.m. – 11:00 a.m.
Morning Coffee Break
11:00 a.m. – 12:30 p.m.
Workshops: Session II
Beyond De-Identification: The Care and Feeding of Trust Relationships in Biobanking
Keywords: biobank, ELSI, research
Approaches to Clinical Decision Support in Genomics: Family Health History as an Exemplar
Keywords: family health history, clinical care, risk assessment
Should Social Media Be Used As a Means to Reduce Lost to Follow-up for Newborn Screening Programs?
Keywords: newborn screening, social media
Genetic TMI: Ways to Think about and Use Massive Amounts of Sequence Information.
Keywords: genetic conditions, sequencing, education
12:30 p.m. – 1:30 p.m.
Lunch
1:30 p.m. – 3:00 p.m.
Workshops: Session III
Genotype-Driven Research Recruitment and the Return of Individual Genetic Results
Keywords: research, ELSI
Public Health Approach to Rare Disorders
Keywords: public health, rare diseases
Emergency Preparedness and Transition Activities within the Regional Collaboratives
Keywords: rare diseases, newborn screening, electronic health records, innovation
Gene Screen
Keywords: film, advocacy
3:00 p.m. – 3:30 p.m.
Afternoon Coffee Break
3:30 p.m. – 5:00 p.m.
Workshops: Session IV
Evolving Models of Biobank Governance
Keywords: biobank, ELSI
Family Medical Data Sharing and Ethical Norms
Keywords: family history, electronic health records, ELSI
Walking in My Shoes
Keywords: advocacy, education
Newborn Screening: Innovative Approaches to Collaboration
Keywords: newborn screening, social media
6:00 p.m. – 7:00 p.m.
Cocktail Reception
7:00 p.m. – 10:00 p.m.
10:00 p.m. – 12:00 a.m.
After Hours Social
This year, after hours featured renowned flat picker Marc Chevalier (his band Cranberry Fog was a major supporter of GINA) and his old college roommate.
Sunday, June 26, 2011 I
7:00 a.m. – 9:00 a.m.
Registration
8:00 a.m. – 9:00 a.m.
Breakfast
9:00 a.m. – 12:00 p.m.
9:00 a.m. – 3:00 p.m.
9:00 a.m. – 3:00 p.m.
12:00 p.m. – 1:00 p.m.
Lunch
