Workshops: Session IV
Saturday, July 17, 2010
3:30 PM - 5:00 PM

This workshop will present the benefits and challenges of leveraging existing population-based birth defects surveillance programs to include heritable conditions, such as inborn errors of metabolism. Presenters will discuss methodologies, including active case ascertainment and data linkage of administrative data sets, and address case identification and ascertainment, data collection, data use, and project evaluation.

Presenters:
Cynthia Hinton — Health Scientist, Centers for Disease Control and Prevention
Paul Romitti — Director, Iowa Registry for Congenital and Inherited Disorders
Ying Wang — Chief, Informatics Unit, New York State Congenital Malformations Registry