2010 Genetic Alliance Annual Conference Daylong Services Symposium

Daylong Symposium: Services Friday, July 16, 2010 9:00 AM - 6:00 PM This year’s Services daylong session focuses on novel and appropriate methods for communicating genetics information. The first half of the day features individual speakers presenting examples of how a specific medium is used to disseminate genetic and/or risk information. Many types of media will be showcased, from traditional print-based outreach to tech-driven approaches. During the afternoon, panelists representing a variety of perspectives debate how best to navigate the matrix of message content, media type, target audience, funding, and timing of message delivery. A mix of presentations, Q&A sessions, and small-group discussion will keep participants engaged throughout the day while promoting innovation and brainstorming on the fly. Co-facilitated by: Cathy Wicklund, Director, Graduate Program in Genetic Counseling, Northwestern University Amelia Chappelle, Associate Director of Genetics Resources and Services, Genetic Alliance
9:00 AM – 9:30 AM	Welcome and Introduction to the Day
9:30 AM – 9:50 AM	Text Messaging: Text4Baby Judy Meehan, Executive Director, National Healthy Mothers, Healthy Babies Coalition
9:50 AM – 10:10 AM	Personal Interactions: DNA Direct Trisha Brown, Vice President, Clinical Affairs, DNA Direct
10:10 AM – 10:30 AM	Smartphone and iPad Applications: My Genome Scott Kahn, Chief Information Officer, Illumina, Inc.
10:30 AM – 11:00 AM	Break
11:00 AM – 11:20 AM	Print: Does It Run In the Family? Toolkit Vaughn Edelson, Programs Manager, Genetic Alliance
11:20 AM – 11:40 AM	Telehealth: Heartland Regional Genetics & Newborn Screening Collaborative Telemedicine Services Shobana Kubendran, Genetic Counselor, Kansas University School of Medicine – Wichita Shannon Barringer, Program Manager, Department of OB/GYN and Center for Distance Health, University of Arkansas for Medical Sciences
11:40 AM – 12:00 noon	Websites and Tools: National Human Genome Research Institute Education Website Jeffre Witherly, Senior Advisor, Education and Community Involvement Branch, NHGRI
12:00 noon – 12:20 PM	Film: Discovery Channel Health and Medical Programming Wayne Barbin, Executive Producer, Discovery Studios
12:20 PM – 1:30 PM	Lunch
1:30 PM – 2:30 PM	Media Match This panel focuses on the types of media and delivery mechanisms that appeal to different audiences, the nature of information, and message timing. Balaji Srinivasan, CTO, Counsyl Robin Strongin, CEO, Amplify Public Affairs Susan Brown, Director of Education, Susan G. Komen Breast Cancer Foundation Turna Ray, Editor, PGx Reporter, GenomeWeb LLC
2:30 PM – 3:30 PM	Money Matters This panel explores the role funding plays in disseminating genetics and risk information, including cost-sharing, getting the most “bang for your buck” for media, stretching a budget, and exploring what is appealing to funders. Andrea Williams, Executive Director, Children’s Sickle Cell Foundation, Inc. Kimberly McClearly, President & CEO, The CFIDS Association of America Penny Kyler, Public Health Analyst, Genetic Services Branch, Maternal and Child Health Bureau, Department of Health and Human Services
3:30 PM – 4:00 PM	Break
4:00 PM – 5:00 PM	Develop a Service Delivery Model Participants and speakers will divide into teams and have one hour to develop an innovative service delivery model. Moderators will give each group a specific “service” to work with (a type of genetic test, family history information, etc). Groups should consider target audiences, technologies, providers, implementation resources, and other parameters that will be discussed.
5:00 PM – 6:00 PM	Discussion and Wrap-Up Small groups will share their service delivery models with the larger group. Discussions will include advantages, disadvantages, and novel aspects of each model.