2010 Annual Conference Agenda

Welcome
Genetic Alliance moves into the new decade understanding the value of strong partnerships. There is a benefit to hard times: As a community, we begin to understand that our productivity and our potential for success depend on collaboration.

We are one year into the new administration, on the verge of critical health reform. Through openness and partnerships, let us create meaningful partnerships that advance science, policy, translation,
and treatments.

We invite you to our 2010 Annual Conference, Advancing Novel Partnerships, to open yourself to new perspectives and relationships and, in doing so, begin your own transformation. Novel partnerships will fuel our success as a community!

Agenda

KEY:

Health IT

Partnership

Genetic Information

Public Health

Thursday, July 15, 2010

8:00 AM - 5:00 PM	Genetics Day on the Hill
6:30 PM - 9:00 PM	Gene Screen: A Night of Film on Health and Genetics

Friday, July 16, 2010

7:00 AM - 6:00 PM	Registration
8:00 AM - 8:30 AM	Welcome Breakfast
8:30 AM - 9:00 AM	State of the Alliance Address
9:00 AM - 6:00 PM	DAYLONG SYMPOSIA Leadership — Inside Transformation: The Anatomy of Being a Change-Maker Organizational Development — Strategies for Sustainability and Success Research — Building Partnerships Services — Communicating Genetics and Risk Information
6:00 PM - 7:00 PM	Cocktail Reception
7:00 PM - 10:00 PM	Dinner Debates Who Wears the Pants? Evolving Power Dynamics in Clinical Care The DNA Full Monty: Who is that (un)Masked Man?
10:00 PM - 12:00 midnight	After Hours Social

Saturday, July 17, 2010

7:00 AM - 6:00 PM	Registration
7:15 AM - 8:00 AM	Morning Walk
8:00 AM - 9:00 AM	Networking Breakfast
9:00 AM - 10:30 AM	Workshops: Session I Making Electronic Health Records Meaningful for Providers and Portable for Children with Special Health Needs Effective Care Coordination to Improve Outcomes for Children with Genetic Conditions New CDC Guideline for Molecular Genetic Testing: Relevance to and Utility for Patients and Consumers Newborn Screening State Advisory Committees: Challenges to Policy Developments for Residual Samples
10:30 AM - 11:00 AM	Morning Coffee Break
11:00 AM - 12:30 PM	Workshops: Session II Health Information Exchange in Newborn Screening Whenever You’re Near, I Hear a Symphony: Synergistic Genetic and Interdisciplinary Leadership Training The Role of Direct-to-Consumer Genetic Testing in the Advent of Personalized Medicine GEDDI Project: A Public Health Approach for Integrating Genetics Information
12:30 PM - 1:30 PM	Lunch
1:30 PM - 3:00 PM	Workshops: Session III Science 2.0, Medicine 2.0, Health 2.0, and Open Science: The Revolution is Now HRSA Genetics Collaboratives: Strengthening Partnerships to Improve Newborn Screening Improving Patient Outcomes Through Targeted Therapeutics and Electronic Delivery Systems Public Health Partnerships to Advance Education and Utilization of Genetic Services
3:00 PM - 3:30 PM	Afternoon Coffee Break
3:30 PM - 5:00 PM	Workshops: Session IV Genetics and Genomics Competency Centers and Resource Repositories Congenital Conditions Program and GARD – Connecting Families to Information Family History, Prenatal Care, and Novel Health Information Technology: A Collaborative Risk Assessment and Educational Tool for Health Professionals and the Public Leveraging Existing Resources to Conduct Public Health Surveillance of Heritable Disorders
6:00 PM - 7:00 PM	Cocktail Reception
7:00 PM - 10:00 PM	Annual Awards Dinner
10:00 PM - 12:00 midnight	After Hours Social

Sunday, July 18, 2010

9:00 AM - 10:00 AM	Breakfast, Open Networking
10:00 AM - 3:00 PM	Create Your Own Adventure: Open Space Technology
10:00 AM - 3:00 PM	Inside Transformation: The Anatomy of Being a Change-Maker

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2010 Annual Conference Agenda