Integrating Consumer Perspectives into Newborn Screening

Integrating Consumer Perspectives into Newborn Screening

WORKSHOPS: Session I
Saturday, July 18, 2009
9:00 AM - 10:30 AM

This workshop will discuss three different processes of consumer integration into NBS educational outreach, research, and future project development. This was achieved through establishing open lines of communication among parents, advocates, and health professionals. This session will include models on how to involve a range of consumers in health initiatives.

Presenters:
Natasha Bonhomme — Director of Strategic Development, Genetic Alliance
Kirsty McWalter — Genetic Counselor, Hawaii Department of Health
Kimberly Noble Piper — State Genetics Coordinator, Iowa Department of Public Health

Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org