2009 Awards
Art of Listening celebrates a health care professional who goes beyond what is required, takes the time to listen and understand, contributing a vast amount to advancing understanding of the disease, so that both treatment and research are accelerated.
Art of Reporting acknowledges a media professional whose reporting contributes to public awareness and understanding about genetic advancements or advocacy organizations and their impact on real people’s lives.
Art of Industry Partnership honors a for-profit Biotechnology, Pharmaceutical, or genetics company
whose track record models the benefits of creative partnerships between
consumer advocates and industry to advance understanding and treatment
of genetic conditions, disorders, and diseases.
The winners for 2009 Genetic Alliance Awards are selected and will be announced on this page soon.
Winners will be honored at the Genetic Alliance
2009 Annual Conference:
Discovering Openness in Health Systems at the Saturday awards dinner, on Saturday, July 18th, 2009 at the Bethesda North Marriott Hotel and Conference Center.
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Guidelines for Evaluating Nominees for Genetic Alliance Awards
Art of Listening –
Honors a health professional who models the importance of caring, receptive professionals in the lives of individuals and families living with genetic conditions. Someone who:
- Takes the time to listen and understand—beyond the medical diagnosis (25 points)
- Understands the importance of listening as an invaluable key to understanding and helping and so a number of families and individuals offer testimony (25 points)
- Eases the difficult, often frustrating, journey faced by individuals and families dealing with the uncertainties and ambiguities of a genetic condition (25 points)
- Appreciates the power of advocacy organizations (25 points)
Art of Reporting –
Honors a reporter or journalist who models the special responsibility to report fairly and impartially about developments in genetics and the impact of these discoveries on people’s lives. Someone who has:
- Produced an especially powerful print or broadcast piece that builds public awareness of genetics or genetic conditions (20 points)
- Worked together with an advocacy organization to produce the piece (20points)
- Was accurate in their representation of the condition and the science (20 points)
- Models excellence in reporting, exemplifying the compassion and caring that is so important in explaining and reporting on genetic conditions (20 points)
- Contributes to public awareness and understanding about genetic advancements and their impact on real people’s lives (10 points)
- Heightens awareness of the fine line between education and exploitation and of the sensitivities that surround writing about people with genetic conditions (10 points)
- Was accurate in their representation of the condition and the science (5 points)
Art of Industry Partnership –
Honors a biotechnology, pharma or genetics company whose track record models the benefits of creative partnerships between advocates and industry to advance understanding and treatment of genetic conditions, disorders and diseases. Someone who has:
-Provided significant support to disease advocacy organizations (25 points)
- Shown insight and vision in the way consumer advisors are involved in their projects (30 points)
- Raised awareness in the corporate community of the need for collaboration with the disease advocacy community (15 points)
- Shows evidence of genuine partnering in planning and execution of project (30 points)
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