Education and Resources for the Public about Rare and Common Genetic Disorders: A Trans-NIH Approach

Education and Resources for the Public about Rare and Common Genetic Disorders: A Trans-NIH Approach

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  WORKSHOPS: Session IV
Saturday, July 12th, 2008
3:30 - 5:00 pm

The National Institutes of Health (NIH) is translating genetic and genomic discoveries and their applications to genetic conditions to the general public in layman's language. The panel will present information on and discuss 1) the Trans-NIH Working Group for Genetics Education of the Public, 2) the Genetic and Rare Diseases Information Center (GARD), 3) the Public Trust Initiative of NIH, and 4) the Self Reliance Foundation's outreach effort with funding from the National Human Genome Research Institute.

Presenters:

Dale Lea - National Human Genome Research Institute   
Lisa Kaeser - NICHD, Office of Program and Public Liaison   
Janine Lewis - Genetic and Rare Diseases Information Center   
Alicia Santiago - Self Reliance Foundation
May L. Cheh - National Library of Medicine   

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