Policy Issues Survey - March 2008

Policy Issues Survey - March 2008

March Bulletin Survey - Policy

n=235

  1. Which types of organizations do you represent? Mark all that apply.  
Disease-specific organization 41%
Other nonprofit 13%
Government agency (national or state) 17%
Industry 6%
Laboratory 5%
Academic Institution 26%
Professional society 11%
Trade association 0%
Hospital 6%
Other, please specify
View Responses
11%

  2. How important are these policy issues for you right now?  
On a scale of 1 (not at all important) to 5 (very important) 1 2 3 4 5
Access to/pricing of prescription drugs 16% 14% 20% 21% 29%
Direct to consumer genetic testing 8% 9% 23% 23% 38%
Genetic testing regulation 3% 8% 17% 26% 49%
Genetic testing and drug reimbursement 6% 9% 13% 31% 42%
Genetic services work force issues 10% 16% 22% 23% 29%
Genetic information nondiscrimination 4% 8% 8% 22% 58%
Medical foods 24% 23% 19% 18% 15%
Newborn screening state mandates 17% 14% 16% 21% 32%
Newborn screening follow up 15% 14% 13% 21% 37%
Open access to NIH funded research 6% 8% 16% 30% 41%
Stem cell research 7% 12% 19% 28% 34%
  3. Are there any other policy issues important to you that are not listed above?  
View 84 Responses

  4. Does your organization have a policy department?  
Yes 42%
No 58%
Total 100%
  5. Have you taken any action on the Genetic Information Nondiscrimination Act (GINA)?  
Yes 52%
No 48%
Total 100%

  6. If you took action on GINA, please specify what methods you used.  
Called my Senator 33%
Wrote a letter to my Senator 58%
Spoke to a Senate staffer in person 25%
Encouraged Senator Reid to bring GINA to the Floor 28%
Other, please specify
View Responses
39%

  7. Did you participate in Genetics Day on the Hill in 2007?  
Yes 7%
No 93%
Total 100%
  8. Do you plan to participate in Genetics Day on the Hill on July 10, 2008?  
Yes 19%
No 81%
Total 100%

  9. What is your greatest policy achievement to date?  
View 93 Responses
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org