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Should we all contribute DNA for research? Large collections of DNA are needed to advance our understanding of genetics and health, and ethicists are asking if we all have an obligation to participate in research. Eric Juengst, a bioethicist at UNC Chapel Hill, explores several models for participation in a national bibiobanking system, including a voluntary genetic service corps.

Read the article.

National Institutes of Health (NIH) is creating a new center to accelerate drug development. The National Center for Advancing Translational Sciences, expected to open in October 2011, will include the Molecular Libraries screening program, Therapeutics for Rare and Neglected Diseases (TRND), NCRR's Clinical and Translational Science Awards (CTSA), and the Cures Acceleration Network, a new program created by the health care reform bill.

Read the Science article or The Wall Street Journal health blog.

Genetic Alliance is proud to present a variety of resources to help individuals and organizations stay informed and to engage and participate. Sign up for our weekly bulletin, our weekly policy bulletin, or our quarterly newborn screening newsletter.

Learn more about our resources and services.

Genetic Alliance is conducting a survey about the informed consent process for registries and biobanks. Please complete the short survey to share your experiences. The results will be used to inform our services and training opportunities.

Take our survey.

Genetic Alliance Registry and BioBank wishes you a happy new year. We are very excited for 2011, as we will be announcing new initiatives and training opportunities for the advocacy community.

We look forward to partnering with you next year.