Liz Horn, PhD, MBI
Director, Genetic Alliance BioBank
Genetic Alliance

Liz Horn is the director of the Genetic Alliance Registry & BioBank, and has served on the BioBank advisory board since 2004. She earned her doctorate in Molecular Pharmacology and Cancer Therapeutics from SUNY at Buffalo, NY. She was a National Library of Medicine fellow in biomedical informatics and received her MBI from Oregon Health & Science University. She has worked in the nonprofit sector for the past eight years, developing and advancing research initiatives for patient and physician advocacy organizations, with a focus on registries and biobanks. She is trained in both quantitative and qualitative methods, and has conducted focus groups, consensus exercises, and various surveys, including a national survey panel.

Liz has developed a wide variety of educational and training materials for medical professionals and consumers, breaking down complex medical and scientific concepts. She recently developed a suite of tools for individuals establishing or managing registries or biobanks. She has also facilitated numerous round-table consensus exercises with physicians to develop expert opinion on clinical decision-making. She has presented at national and international meetings and has more than 30 peer-reviewed publications. She is passionate about cultivating non-traditional research collaborations, exploring governance issues in biobanking, and developing citizen scientist-driven research initiatives. Follow Liz on Twitter @GABioBank or visit www.biobank.org.