Genetic Alliance Advocates Partnership Program

Genetic Alliance Advocates Partnership Program

ACMG QuoteGenetic Alliance proudly partners with a number of the nation’s leading health professional societies and organizations to offer an Advocates Partnership Program integrated into annual meetings across the country. The program is specifically designed to foster collaborations between the advocacy community (including disease-specific and community organization leaders, individuals and families affected by genetic conditions, and students/youth) and health professionals. Up to 20 advocates attend each conference and participate in exclusive meetings with leaders in the fields of clinical genetics, scientific research, drug and test development,  and government. The Advocates Partnership Program offers an unparalleled opportunity for participants to gain unique insight into a variety of professions while networking with advocates and professionals from around the world.

Genetic Alliance proudly partners with the American Society of Human Genetics (ASHG), the American College of Medical Genetics (ACMG), and the National Society of Genetic Counselors (NSGC) to provide the Advocates Partnership Program paired with their annual meetings.

ACMG QuoteRead a reflection on the Advocates Partnership Program at the American College of Medical Genetics (ACMG) Clinical Genetics Conference in March 2010 in Albuquerque, NM. The reflection was featured in the June 2010 issue of the NCC Collaborator, a publication of the National Coordinating Center for the Regional Genetic and Newborn Screening Service Collaboratives, a partnership with the GSB/MCHB/HRSA through a cooperative agreement with the ACMG.

  NSGC APP 2010  
Advocates at the October 14-17, 2010 NSGC Annual Education Conference in Dallas, TX
It is very empowering for me to know that my opinion as an advocate is respected and even sought out. I can pass this knowledge on to other parents to help encourage them to speak up as well. SO many parents feel that their voices are not heard and that they can't control research. Which is not the case at all. Your program is perfect in giving parent advocates the encouragement, tools and resources to fight for our kids.
Jill Wood, Jonah’s Just Begun-Foundation to Cure Sanfilippo, NY 2010 Participant, ASHG Annual Meeting

 

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