About the ATLAS

What resources are included in the ATLAS?

All resources have been carefully vetted by the development team to ensure they are relevant and accessible. The criteria used to screen each resource are as follows:

Relevance:

  • Is this resource considered relevant (up-to-date)?
  • Are consumers (families and individuals) the target audience for this resource?

Content:

  • Does the resource use person-first language?
  • Is the content of the resource easy to read? (low reading level, accessible language)
  • Is the content of the resource considered a best practice/evidence-based?
  • Does the resource align with an overall vision of inclusion, community living, and self-determination?

Format:

  • Is the resource easy to navigate and understand? (clear, concise, intuitive)
  • All resources must be free to access and available online.

Do you know of additional resources for the Advocacy ATLAS? Send your resources to Sharon Romelczyk at sromelczyk@geneticalliance.org.

Thank you to our funding partners

Advocacy ATLAS was developed by Genetic Alliance in partnership with Parent to Parent USA and Family Voices with support from the Health Resource and Service Administration (HRSA), Grant no. U22MC04100, National Coordinating Center for the Regional Genetic Services Collaboratives. This project was funded in part by the Maternal and Child Health Bureau, Health Resources and Services Administration (HRSA) Grant No. U35MC16451, Congenital Conditions Program, in partnership with the Arc and Family Voices. The content of this webpage is solely the responsibility of Genetic Alliance and does not necessarily represent the official views of HRSA.

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