Webinar Archive
Genetic Alliance has hosted webinar series in order to offer a forum for professionals and lay people to hear about new programs and policies in genetic medicine. From newborn screening to genetic testing regulation, family health history, and tools for running an advocacy organization, the collection of recorded webinars offers a wide array of information on an equal wide array of topics.
For the list of upcoming webinars, please visit our Upcoming Webinars page.
2017 Archives
2016 Webinars
Patient Navigation: Care Coordination Meets Peer Support
August 2, 2016
PowerPoint Slides | Webinar Recording
2014-2015 Webinars
Familial Hypercholesterolemia in Public Health and Clinical Practice
July 30, 2015
Sardella |Mikail |Knowles |Sturm | Neal | Webinar Recording
Improving Services for Individuals with Genetic Conditions
July 9, 2015
PowerPoint Presentation | Webinar Recording
Genetic Alliance BioBank: One Stop Shopping for Nonprofits to Bank Biological Samples
May 19, 2015
PowerPoint Presentation | Webinar Recording
Lynch Syndrome: A Public Health Approach
April 21, 2015
Slides: Duquette | Hampel | Lowery | McDaniel | Webinar Recording
Are You Ready? Emergency Preparedness Strategies and Resources
April 02, 2015
Presentation Slides | Recording
Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risk
January 29, 2015
Presentation Slides | Recording
Hereditary Breast and Ovarian Cancer in Public Health
November 21, 2014
Bellcross | Pal | Warren | Friedman | Sardella/Cox | Recording
Public Health Genomics In Practice
April 8, 2014
Burke | Cox | Lochner Doyle | Khoury | Lowery | Recording
Sharing Clinical Trial Data: Soliciting your thoughts on IOM Framework Report
March 17, 2014
Slides | Recording
Fill out Survey
Impact Awards Informational Webinar
January, 23 2014
Slides | Recording
Newborn Screening Rates In The Homebirth Community
January, 22 2014
Recording
Familial Hypercholesterolemia in Public Health and Clinical Practice
July 30, 2015
Sardella |Mikail |Knowles |Sturm | Neal | Webinar Recording
Improving Services for Individuals with Genetic Conditions
July 9, 2015
PowerPoint Presentation | Webinar Recording
Genetic Alliance BioBank: One Stop Shopping for Nonprofits to Bank Biological Samples
May 19, 2015
PowerPoint Presentation | Webinar Recording
Lynch Syndrome: A Public Health Approach
April 21, 2015
Slides: Duquette | Hampel | Lowery | McDaniel | Webinar Recording
Are You Ready? Emergency Preparedness Strategies and Resources
April 02, 2015
Presentation Slides | Recording
Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risk
January 29, 2015
Presentation Slides | Recording
Hereditary Breast and Ovarian Cancer in Public Health
November 21, 2014
Bellcross | Pal | Warren | Friedman | Sardella/Cox | Recording
Public Health Genomics In Practice
April 8, 2014
Burke | Cox | Lochner Doyle | Khoury | Lowery | Recording
Sharing Clinical Trial Data: Soliciting your thoughts on IOM Framework Report
March 17, 2014
Slides | Recording
Fill out Survey
Impact Awards Informational Webinar
January, 23 2014
Slides | Recording
Newborn Screening Rates In The Homebirth Community
January, 22 2014
Recording
2014 Webinar Series: Managing the Mass of Measures: Real People's Real Data Made Useful
2014 Webinar Series:Managing the Mass of Measures: Real People's Real Data Made Useful
Mini-Sentinel
October 1, 2014
PowerPoint Presentation | Webinar Recording
CDISC
September 9, 2014
PowerPoint Presentation | Webinar Recording
tranSMART
August 5, 2014
Elliston | Avillach | Webinar Recording
SMART: Building the App Store for Health
July 22, 2014
Mandl | Webinar Recording
Common Data Elements
July 09, 2014
Sheehan | Webinar Recording
PROMIS
June 24, 2014
Keller | Rothrock | Webinar Recording
PCORI Methodology Report
June 3, 2014
PowerPoint Presentation | Webinar Recording
i2b2
May 22, 2014
Kohane | Murphy | Avilach | Webinar Recording
REDCap
May 16, 2014
Duda | Webinar Recording
PhenX
May 8, 2014
Hamilton, McCarty, Huggins | Webinar Recording
PhenomeCentral
April 29, 2014
Brudno | Recording
2013 Advocacy Webinars
Resources on Access, Support and Advocacy in the Health and Insurance Worlds
November, 26 2013
Presentation | Recording
Resources for Advocacy Through the Transition Years and Beyond
October, 15 2013
Atkins | Corde | Feldman | King
Recording
Empowering Individuals as Advocates
September, 23 2013
2013 Baby's First Test Webinar Series
Educating African American Mother's on the Importance of Newborn Screening
November, 13 2013
Recording
Connecting the Dots Through New Born Screening
September, 18 2013
Recording
2013 What about Privacy and Progress in Whole Genome Sequencing? Webinar Series
2013 What about Privacy and Progress in Whole Genome Sequencing? Webinar Series Archive is also available at www.http://geneticalliance.org/privacy-webinar-series.
Ancestry and WGS: other privacy concerns?
December, 10 2013
Chahine | Wagner |
Recording
Technology: Is a Deeper Dive Needed?
October, 8 2013
Erlich | Mathews | Shelton
Recording
Conclusions
September, 10 2013
Lee | Edwards
Recording
Recommendation 5 – Public benefit
August, 13 2013
Beery | Ossorio | Whitener
Recording
Recommendation 4 – Facilitating progress in whole genome sequencing
July, 9 2013
Billings | Rodriguez
Recording
Recommendation 3 – Consent
June, 11 2013
McGuire | Wolf | Wilbanks
Recording
Recommendation 2 – Data Security and Access to Databases
May, 14 2013
Sweeney | Baker | Erlich
Recording
Rec. 1 - Strong baseline protections while promoting data access and sharing
April, 9 2013
Recording
Part B - Summary of the Report
March, 12 2013
PowerPoint Presentation
Recording
Part A - Summary of the Report
February, 12 2013
PowerPoint Presentation
Recording
2013 Registries For All Webinar Series
Reg4All Webinar Series Archive is also available at www.http://geneticalliance.org/reg4all-webinar-series.
Genetic Alliance Rare Disease & Genetic Conditions Support Community on Inspire
August, 8 2013
Recording
Reg4ALL and Individuals
July, 10 2013
PowerPoint Presentation
Recording
Reg4ALL and Researchers
June, 26 2013
Recording
What is Reg4ALL?
May, 1 2013
PowerPoint Presentation
Recording
2012-2011 Webinars
Marketing your Biobank Collection Effectively
October, 11 2012
Recording
Desmystifying the IRB
December, 7 2011
Recording
2012 Baby's First Test Challenge Awards
October, 21 2011
Recording
The Genetic Information Nondiscrimination Act in Action
September, 27 2011
Recording
Meeting Health Challenges through the Arts
September, 7 2011
Recording
Everything You Need to Know: National Center for Advancing Translational Sciences (NCATS)
June, 17 2011
Recording
An Overview: National Center on Birth Defects and Developmental Disabilities, CDC
June 17, 2011
Recording
Educating Members of Congress
June 15, 2011
Recording
Family Health History Patient Education Toolkit: Health Centers Program Awards
March 9, 2011
Recording
Family Health History Patient Education Toolkit: Health Centers Program Awards
March 3, 2011
Recording
Application of Attachment Theory: Will You be There for Me When I Really Need You?
February 23, 2011
Recording
2011 Newborn Screening Clearinghouse Challenge Awards
February 10, 2011
Recording
2010 Webinars
Risk Assessment and Screening Tools
November 17, 2010
Hughes | Bellcross
Recording
Biobank Governance
October, 27 2010
Brown Trinidad | Edwards | Horn
Recording
Social Media Tips and Tricks
October 13, 2010
Petruniak Recording
A Collaborative Risk Assessment and Educational Tool for Health Professionals and the Public
October 6, 2010
Edelman, Lin, and Drohan Recording
Making Your Organization's Registry and/or Biobank a Reality
August 11, 2010
Horn | McCleary | O'Boyle
Recording
The Importance of Participation – Rethinking Clinical Trials
July 7, 2010
Heywood | Lewish | Love
Recording
Advocacy in Genetics on Capitol Hill
July 1, 2010
Swain Recording
A Systematic Approach to Genetics for Early Disease Detection and Intervention
June 16, 2010
O'Leary Recording
Activism through Documentary Film
May 26, 2010
Byrnes | Habib Recording
Translating Genomic Research into Public Health Applications
April 9, 2010
Citrin | Duquette | Khoury | Platt
Recording
How and Why Genes Are Patentable
April 1, 2010
Conley Recording
Genetic Alliance BioBank Grant Application
March 17, 2010
Recording
Wikis 101: Tips and Tricks for Contributing to WikiAdvocacy and WikiGenetics
February 24, 2010
Andreff
Genetic Alliance BioBank: A Virtual Tour of Registry Solutions to Accelerate Research
February 3, 2010
Horn
2009 Webinars
Navigating Copyright in the Digital World
November 18, 2009
Recording
Genetic Testing in a Changing Regulatory Landscape
September 16, 2009
Gibbs | Radensky
Recording
Does It Run In the Family? A New Online Customizable Tool
August 19, 2009
Recording
From Risk Assessment to Lifestyle Choices: What Does it Mean to be a Previvor?
July 22, 2009
Green Recording
Educating Members of Congress
July 7, 2009
Hendricks Recording
Therapeutics for Rare and Neglected Diseases, a New NIH Program
June 25, 2009
Ashlock, Austing, and Groft Recording
Update on the Advisory Committee on Heritable Disorders in Newborns and Children
March 18, 2009
Howell | Puryear
Recording
GINA Implementation: Title II
April 22, 2009
Baruch | Gruber
Recording
Creating Collaborative Publications: A Guide to Genetic Counseling
March 4, 2009
O'Leary | Trepanier
Recording
