Webinar Archive

Genetic Alliance has and will continue to host a number of featured webinar series in order to offer a forum for professionals and lay people to hear about new programs and policies in genetic medicine. From newborn screening to genetic testing regulation, family health history, and tools for running an advocacy organization, the collection of recorded webinars offers a wide array of information on an equal wide array of topics.

For the list of upcoming webinars, please visit our Upcoming Webinars page.

The Sentinel System - FDA's Post-Marketing Safety Surveillance System for Medical Products

April 17, 2018

The Sentinel System is an increasingly vital tool in FDA's post-marketing safety surveillance system for medical products, e.g., drugs, vaccines, and medical devices. This webinar will provide an overview of Sentinel's story, successes, and ongoing value. The webinar will also describe the efforts and impact of a multi-stakeholder engagement work group in developing tailored messages about Sentinel and identifying dissemination channels to reach a diverse audience.

Download Slides: Steve Mikita | Tyler Coyle | Webinar Recording

The Impact of GDPR on Collecting and Using Data

May 23, 2018

On Friday, May 25, the European Union (EU) General Data Protection Regulation (GDPR) will officially begin to govern the collection, processing, and sharing of personal information relating to EU citizens. The new law specifically gives EU citizens stronger, more consistent rights and protections that follow them as they physically and electronically circumnavigate the globe. In this webinar, Dixie B. Baker, Senior Partner at Martin, Blanck & Associates, will provide an overview of GDPR, touching on the key questions any organization should ask itself to determine whether it needs to pursue GDPR compliance, and highlighting the requirements that pose the greatest challenges to most organizations.

Download: Webinar Slides | Q&A Review | Webinar Recording