Press Releases
Genetic Alliance Receives Robert Wood Johnson Foundation Grant, December 22, 2014
DC Outreach, Inc. and PXE International Patient Registries Launch, November 19, 2014
Hepatitis Foundation International Patient Registry Network (HepPRN) Launched Today, October 21, 2014
Genetic Alliance Wins Multi-Million Dollar Newborn Screening Award, September 17, 2014
PCORnet CENA Project Launch, September 15, 2014
Genetic Alliance Applauds Major Step in Mitochondrial Disease Research, August 26, 2014
Genetic Alliance Announces Winners of the Impact Awards, May 30, 2014
Genetic Alliance Announces Funding for Outreach and Education Programs. Impact Awards Request For Proposals Released, January 17, 2014
Genetic Alliance team among PCORI funding recipients to establish the National Patient Centered Clinical Research Network, December 18, 2013
Genetics in Primary Care Institute Presents a NEW tablet-based Pediatric Family Health History Tool, November 22, 2013
Genetic Alliance & PhRMA Announce Pilot Initiative to Advance Patient-Focused Drug Development, November 4, 2013
Empowering Individuals and Families as Advocates The Advocacy ATLAS: Accessible Tools for Leadership and Advocacy Success, October 10, 2013
Genetic Alliance Launches New Web Resource for the Public: GenesInLife.org Offers In-Depth Information on Genetics Services and Access to Experts, August 14, 2013
Genetic Alliance Selects Oracle Health Sciences Network to Help Patients Gain Access to Clinical Trials, June 24, 2013
International Collaboration Announced to Develop GaugeRx, June 10, 2013
New Educational Resource Prepares Clinicians for Genomic Medicine, May 22, 2013
Federal Advisory Committee Recommends Pompe Disease for Newborn Screening, May 17, 2013
Genetic Alliance Announces Registries for All, April 5, 2013
One Stop Shopping for All Diseases: Genetic Alliance Launches Disease InfoSearch, March 19, 2013
Genetic Alliance Funds Innovation in Newborn Screening, March 7, 2013
Genetic Alliance and Inspire Partner on Rare and Genetic Disease Support Community, February 28, 2013
Registries for All Diseases wins $300k to create crowdsourced cross-disease registry, December 12, 2012
Genetic Alliance Funds Innovation in Newborn Screening, September 19, 2012
Genetic Alliance Celebrates Great Day for Translational Science September 14, 2012
Happy Birthday to Baby’s First Test! September 12, 2012
Genetic Alliance Applauds Supreme Court Decision on Affordable Care Act, June 28, 2012
