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Genetic Alliance is called on periodically to testify before congressional committees, advisory committees and other deliberative bodies. In addition, Genetic Alliance actively leverages the voices of its network in formal communication with government officials and agencies. Here are some of the statements presented:

Platform for Engaging Everyone Responsibly Awardees Announced, March 24, 2015

Genetic Alliance Receives Robert Wood Johnson Foundation Grant, December 22, 2014

DC Outreach, Inc. and PXE International Patient Registries Launch, November 19, 2014

Hepatitis Foundation International Patient Registry Network (HepPRN) Launched Today, October 21, 2014

Genetic Alliance Wins Multi-Million Dollar Newborn Screening Award, September 17, 2014

PCORnet CENA Project Launch, September 15, 2014

Genetic Alliance Applauds Major Step in Mitochondrial Disease Research, August 26, 2014

Genetic Alliance Announces Winners of the Impact Awards, May 30, 2014

Baby’s First Test, the Nation’s Educational Resource Center for Newborn Screening, Announces 2014 Challenge Award Recipients, May 7, 2014

Genetic Alliance Announces Funding for Outreach and Education Programs. Impact Awards Request For Proposals Released, January 17, 2014

Genetic Alliance team among PCORI funding recipients to establish the National Patient Centered Clinical Research Network, December 18, 2013

Genetics in Primary Care Institute Presents a NEW tablet-based Pediatric Family Health History Tool, November 22, 2013

Genetic Alliance & PhRMA Announce Pilot Initiative to Advance Patient-Focused Drug Development, November 4, 2013

Empowering Individuals and Families as Advocates The Advocacy ATLAS: Accessible Tools for Leadership and Advocacy Success, October 10, 2013

Genetic Alliance Launches New Web Resource for the Public: Offers In-Depth Information on Genetics Services and Access to Experts, August 14, 2013

Genetic Alliance Selects Oracle Health Sciences Network to Help Patients Gain Access to Clinical Trials, June 24, 2013

International Initiative Applauds the Supreme Court Decision Eliminating Gene Patents and Announces the Launch of a Public Database for Hereditary Gene Mutations, June 13, 2013

International Collaboration Announced to Develop GaugeRx, June 10, 2013

New Educational Resource Prepares Clinicians for Genomic Medicine, May 22, 2013

Federal Advisory Committee Recommends Pompe Disease for Newborn Screening, May 17, 2013

Genetic Alliance Announces Registries for All, April 5, 2013

One Stop Shopping for All Diseases: Genetic Alliance Launches Disease InfoSearch, March 19, 2013

Genetic Alliance Funds Innovation in Newborn Screening, March 7, 2013

Genetic Alliance and Inspire Partner on Rare and Genetic Disease Support Community, February 28, 2013

Registries for All Diseases wins $300k to create crowdsourced cross-disease registry, December 12, 2012

Genetic Alliance Funds Innovation in Newborn Screening, September 19, 2012

Genetic Alliance Celebrates Great Day for Translational Science September 14, 2012

Happy Birthday to Baby’s First Test! September 12, 2012

Genetic Alliance Applauds Supreme Court Decision on Affordable Care Act, June 28, 2012

[2011-1996 Press Release Archives]

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4301 Connecticut Ave NW, Suite 404, Washington DC 20008-2369 | Tel: 202.966.5557 | Fax: 202.966.8553 | EIN 52-1571905

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