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Press Releases

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Genetic Alliance is called on periodically to testify before congressional committees, advisory committees and other deliberative bodies. In addition, Genetic Alliance actively leverages the voices of its network in formal communication with government officials and agencies. Here are some of the statements presented:

Baby’s First Test Funds Innovative Newborn Screening Education Program for Hospital NICU, March 14, 2016

Genetic Alliance and PCORnet to Participate in Precision Medicine Summit with President Obama, February 25, 2016

New Dietary Guidelines for Americans Released, Including Recommendations for Pregnant and Breastfeeding Women, January 7, 2016

Genetic Alliance Launches National Survey on Genetic Services, September 28, 2015

CENA Approved for $1.2 Million in Second Phase of Development of PCORnet, a New National Clinical Research Network, July 27, 2015

Perinatal Nutrition Working Group Finds New Home in Expecting Health, July 22, 2015

Genetic Alliance’s PEER Registry Recognized at White House Precision Medicine Initiative Event, July 8, 2015

Claritas Genomics and Genetic Alliance Announce Partnership to Enable Patients and Families in Clinical Care to Participate in Pediatric Rare Disease Research, June 23, 2015

Baby's First Test Upgrades English and Spanish Newborn Screening Web Tools (En Español), April 28, 2015

G-PACT and Genetic Alliance to Collect Feedback for FDA’s Patient–Focused Drug Development Initiative, April 22, 2015

Genetic Alliance to Coordinate PCORI’s Patient Powered Research Networks, April 20, 2015

Platform for Engaging Everyone Responsibly Awardees Announced, March 24, 2015

[2014-1996 Press Release Archives]

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4301 Connecticut Ave NW, Suite 404, Washington DC 20008-2369 | Tel: 202.966.5557 | Fax: 202.966.8553 | EIN 52-1571905

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