Sign Up For Mailing List Button

Donate to Genetic Alliance

Disease Search Button

Press Releases

Facebook icon
Google+ icon
Twitter icon
LinkedIn icon icon
Digg icon

Genetic Alliance is called on periodically to testify before congressional committees, advisory committees and other deliberative bodies. In addition, Genetic Alliance actively leverages the voices of its network in formal communication with government officials and agencies. Here are some of the statements presented:

New Dietary Guidelines for Americans Released, Including Recommendations for Pregnant and Breastfeeding Women, January 7, 2016

Genetic Alliance Launches National Survey on Genetic Services, September 28, 2015

CENA Approved for $1.2 Million in Second Phase of Development of PCORnet, a New National Clinical Research Network, July 27, 2015

Perinatal Nutrition Working Group Finds New Home in Expecting Health, July 22, 2015

Genetic Alliance’s PEER Registry Recognized at White House Precision Medicine Initiative Event, July 8, 2015

Claritas Genomics and Genetic Alliance Announce Partnership to Enable Patients and Families in Clinical Care to Participate in Pediatric Rare Disease Research, June 23, 2015

Baby's First Test Upgrades English and Spanish Newborn Screening Web Tools (En Español), April 28, 2015

G-PACT and Genetic Alliance to Collect Feedback for FDA’s Patient–Focused Drug Development Initiative, April 22, 2015

Genetic Alliance to Coordinate PCORI’s Patient Powered Research Networks, April 20, 2015

Platform for Engaging Everyone Responsibly Awardees Announced, March 24, 2015

Genetic Alliance Receives Robert Wood Johnson Foundation Grant, December 22, 2014

DC Outreach, Inc. and PXE International Patient Registries Launch, November 19, 2014

Hepatitis Foundation International Patient Registry Network (HepPRN) Launched Today, October 21, 2014

Genetic Alliance Wins Multi-Million Dollar Newborn Screening Award, September 17, 2014

PCORnet CENA Project Launch, September 15, 2014

Genetic Alliance Applauds Major Step in Mitochondrial Disease Research, August 26, 2014

Genetic Alliance Announces Winners of the Impact Awards, May 30, 2014

Baby’s First Test, the Nation’s Educational Resource Center for Newborn Screening, Announces 2014 Challenge Award Recipients, May 7, 2014

Genetic Alliance Announces Funding for Outreach and Education Programs. Impact Awards Request For Proposals Released, January 17, 2014

Genetic Alliance team among PCORI funding recipients to establish the National Patient Centered Clinical Research Network, December 18, 2013

Genetics in Primary Care Institute Presents a NEW tablet-based Pediatric Family Health History Tool, November 22, 2013

Genetic Alliance & PhRMA Announce Pilot Initiative to Advance Patient-Focused Drug Development, November 4, 2013

Empowering Individuals and Families as Advocates The Advocacy ATLAS: Accessible Tools for Leadership and Advocacy Success, October 10, 2013

Genetic Alliance Launches New Web Resource for the Public: Offers In-Depth Information on Genetics Services and Access to Experts, August 14, 2013

Genetic Alliance Selects Oracle Health Sciences Network to Help Patients Gain Access to Clinical Trials, June 24, 2013

International Initiative Applauds the Supreme Court Decision Eliminating Gene Patents and Announces the Launch of a Public Database for Hereditary Gene Mutations, June 13, 2013

International Collaboration Announced to Develop GaugeRx, June 10, 2013

New Educational Resource Prepares Clinicians for Genomic Medicine, May 22, 2013

Federal Advisory Committee Recommends Pompe Disease for Newborn Screening, May 17, 2013

Genetic Alliance Announces Registries for All, April 5, 2013

One Stop Shopping for All Diseases: Genetic Alliance Launches Disease InfoSearch, March 19, 2013

Genetic Alliance Funds Innovation in Newborn Screening, March 7, 2013

Genetic Alliance and Inspire Partner on Rare and Genetic Disease Support Community, February 28, 2013

[2011-1996 Press Release Archives]

Twitter icon
Facebook icon
LinkedIn icon
Google+ icon
YouTube icon
RSS icon

4301 Connecticut Ave NW, Suite 404, Washington DC 20008-2369 | Tel: 202.966.5557 | Fax: 202.966.8553 | EIN 52-1571905

Except where otherwise noted, content on this site is licensed under a Creative Commons Attribution 3.0 License.