Press Releases
KCNT1 Epilepsy Foundation, LunaPBC, and Genetic Alliance to Launch Patient-Led Discovery Program, May 26, 2020
Genetic Alliance and LunaPBC Partner to Support Personal Health and Accelerate Medical Breakthroughs, January 22, 2019
Genetic Alliance CEO is Honored with the Luminary Award from the 2019 World Precision Medicine Congress, January 20, 2019
Genetic Alliance’s Expecting Health Team Awarded Multi-Million Dollar Newborn Screening Family Education Program, September 24, 2018
Statement from Expecting Health on Inhumane Family Seperations, June 20, 2018
Genetic Alliance CEO Details Shortcomings of Nation’s Medical Research Infrastructure in Newly-Released TEDMED Talk, June 15, 2017
Genetic Alliance Supports New NIH Policy on Clinical Trials, September 16, 2016
Baby’s First Test Funds Innovative Newborn Screening Education Program for Hospital NICU, March 14, 2016
Genetic Alliance and PCORnet to Participate in Precision Medicine Summit with President Obama, February 25, 2016
New Dietary Guidelines for Americans Released, Including Recommendations for Pregnant and Breastfeeding Women, January 7, 2016
Genetic Alliance Launches National Survey on Genetic Services, September 28, 2015
CENA Approved for $1.2 Million in Second Phase of Development of PCORnet, a New National Clinical Research Network, July 27, 2015
Perinatal Nutrition Working Group Finds New Home in Expecting Health, July 22, 2015
Genetic Alliance’s PEER Registry Recognized at White House Precision Medicine Initiative Event, July 8, 2015
Baby's First Test Upgrades English and Spanish Newborn Screening Web Tools (En Español), April 28, 2015
G-PACT and Genetic Alliance to Collect Feedback for FDA’s Patient–Focused Drug Development Initiative, April 22, 2015
Genetic Alliance to Coordinate PCORI’s Patient Powered Research Networks, April 20, 2015
Platform for Engaging Everyone Responsibly Awardees Announced, March 24, 2015