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Co-Creating A Healthy Future: Agenda

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Genetic Alliance is celebrating its 30th anniversary. Consistent with our desire to always focus on what matters, this meeting assesses four areas critical to a learning health system, focused on outcomes that matter to people. As we begin a new Administration, it is essential we create a shared vision. We consider tensions in health: from services to research to public health systems.

This is a highly interactive conference, with a blend of the best of grassroots organizing and unconference. We engage with the goal of concrete outcomes, laying the groundwork in each of the four areas and guiding us to work with each other to design projects to advance health. The outcomes will be tangible projects accomplished by formal and informal networks present at the meeting and beyond.

Areas of Focus:

  1. Engagement: a national and/or local approach
  2. People-centered design in health
  3. High touch and/or high tech
  4. Radical innovation and/or iterative improvement


Thursday, March 9, 2017

7:30 - 8:30 AM       Registration and Breakfast

8:30 - 9:15 AM       Welcome and Orientation on to the Day
                              Sharon Terry, President and CEO, Genetic Alliance
                              Participant-centric Focus
                              Joe Selby, Executive Director, Patient-Centered Outcomes Research Institute


9:15 – 10:30 AM  

Opening Plenary Session
Considering tensions in health from services to research to public health, thought leaders lay the groundwork for us to work with each other to design projects that will advance health.

  • Blinded by stereotypes: focusing on the individual
    Adolph Falcón, Executive Vice President, National Alliance for Hispanic Health
  • Engagement: a national and/or local approach
    Melissa Creary, Assistant Professor, Department of Health Management and Policy, University of Michigan School of Public Health
  • People-centered design in health
    Whitney Bowman-Zatzkin, Director, Flip the Clinic
  • High touch and/or high tech
    Stephen Downs, Chief Technology and Strategy Officer, Robert Wood Johnson Foundation
  • Radical innovation and/or iterative improvement
    Shantanu Gaur, Co-founder, Allurion Technologies
10:30- 11:00 AM   Break
11:00 - 1:00 PM  

Workstreams - Act I
Equity will be considered throughout:
Engagement: a national and/or local approach
People-centered design in health
High touch and/or high tech
Radical innovation and/or iterative improvement

Together, the participants will explore solutions using these different perspectives as a guide. Facilitators will share their assumptions, because perspective often dictates value. In addition, we will consider long-term wins vs short-term gains and the impact on resource allocation. Participants will determine how to best use the time over the 2 days in this topic.
1:00 - 2:15 PM   Lunch and Plenary Presentation
Regina Holliday, Evocateur
2:15 - 3:45 PM  

Workstreams Act II
Refine the solutions – what steps can we take in collaboration to solve the problems laid out in the first session?

3:45 – 4:15 PM    Break
4:15 - 5:00 PM  

State of the Four Topics

Reception and Dinner Celebration

6:00 – 7:00 PM   Cocktail Reception and Positive Exposure Exhibit
The Positive Exposure exhibit explores the social and psychological experiences of people living with genetic conditions of all ages and ethno-cultural heritages. This impressive and powerful collection of imagery and narrative celebrates the richness and beauty of human diversity and dignity.
7:00 – 9:00 PM  

Dinner Celebration
We celebrate as a community: fun, light, and uplifting! Toasts include Joan O. Weiss, Mary E. Davidson, and many friends, old and new. And, as usual, a song or two by a famous musical scientist.

Friday, March 10, 2017

7:30- 8:00 AM   Registration
8:00- 9:00 AM  

Networking Breakfast - Topic and Open Tables
People driving research priorities
Patient navigation
*Participants will determine other table topics

9:00- 11:00 AM  

Workstreams Act III 
Four topics and one ‘anarchy’ session for those who don’t feel any of the topics fit them.

  • Choose a project group where you would like to put your energy.
  • Plan this project, including goals, outcomes, and metrics
  • Determine where this project can flourish – which existing network or organization can lead, or do we need a new one?
11:00– 11:30 AM   Break
11:30- 12:30 PM   Presentations of Solutions
12:30– 1:30 PM   Lunch and Sign-up for Ongoing Workgroups
1:30– 2:30 PM   Keynote Address
Reed Tuckson, Managing Director, Tuckson Health Connections
2:30– 3:00 PM   Unveiling of the Conference Painting
Regina Holiday, Evocateur



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4301 Connecticut Ave NW, Suite 404, Washington DC 20008-2369 | Tel: 202.966.5557 | Fax: 202.966.8553 | EIN 52-1571905

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